Friday, June 6, 2014

Thursday, June 5, 2014. On Thursdays Nick gets both chemo and radiation. He had his 8th dose of radiation out of 35, and his 3rd of chemo out of 8.  He explained his  various discomforts  to his oncologist,  who  readjusted the meds. That worked out well, because Nick woke up this morning after a good night’s sleep with  more energy and fewer skin problems.

Earlier in the week, Nick made and posted  a video of himself getting his radiation treatment. While  receiving radiation, he can hear lots of whirring sounds, but he can’t see anything. He must wear a “mask” that was specifically designed for  him, so seeing anything is impossible. His radiology oncologist complimented him on his work and said he’d like to show it to others. Those are  words that Nick loves to hear about his photography. Here it is: https://vimeo.com/97324667 and you can also watch it on this blog.

Today a class of third graders was having a field trip to the radiology department of the hospital just after Nick was being treated. He commented on how adorable they were, and they commented on how fabulous the radiation machines were. This brought back the memory fro 25 years ago of Nicholas going with me to the hospital to see the radiation machinery.

We have heard from friends  who have been through this that one starts to experience a variety of changes after radiation # 9. Today was radiation  # 9, and  as if on cue, Nick’s food is tasting metallic to him. I had something special planned. The family of a friend owns a Chinese grocery store that brings in dim sum from Chinatown in New York on Fridays. When we lived in the city 35+ years ago, we loved going to Chinatown for dim sum. We ordered some. Shrimp dumplings, pork dumplings, leek dumplings, ribs, stuffed eggplant, and more. They were all as delicious as they were back in the day.

I mentioned that Nick is experiencing  a variety of changes. In addition to the change in the taste of food, Nick’s energy level is low. He finds that a few short naps  through the day are helpful.  He even went to his office for a few hours on Friday morning.  TGIF, because Saturday and Sunday are day off from treatments.